Long overdue life update
A ton has happened since my last life update. Some good, some bad but overall I am doing well. Check out what’s been happening below.…
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Chronic Illness
The Summer I Turned Rural
Updated: November 12, 2025: Thank you to Arthrogryposis Multiplex Congenita Support Inc. (AMCSI) for their accessibility grant to individuals which covered these modifications!Updated October 1,…
Ziplining Adventure!
I don’t really have a “bucket list” but I do like having new experiences and adventures. I can now say that I’ve tried ziplining! Last…
Iron Infusion
I can’t believe it’s already June. Over the last few months I’ve been feeling okay; the biggest health update is that I received an iron…
Birthday Reflections and Celebrations
Reflections (Real Talk) Friday, November 22nd marked my 35th birthday. I can’t believe it! It has certainly been a wild 35 years and I’m sure…
Tests and More Tests
Since my last post I’ve had a number of tests to explore the health issues we discussed with my new primary care physician. The bottom…
Medical Update: July 2024
Last week I had an appointment with a new primary care physician. I haven’t really had one since my pediatrician passed away because I have…
“One Moment” by Becky Hunter
5/5 out of stars. .stk-620844b{padding-bottom:12px !important;margin-top:0px !important;margin-right:0px !important;margin-bottom:0px !important;margin-left:0px !important}I really enjoyed “One Moment” by Becky Hunter. The characters, the storyline, underlying message- all of…
“Disability Intimacy” by Alice Wong
As a cis straight disabled woman I was intrigued by this anthology. I was already familiar with some of Alice Wong’s book and advocacy. I…
Light flashes, Black Spots and headaches Oh my…
This is probably going to be a shorter post than I normally would write but it is what is. Last week was filled with some…